Have Your Say

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42 comments on “Have Your Say”

  1. Laura Reply

    Hi Sam, found your blog while searching for help on line. My doctor has just diagnosed C.F.S. but I feel I have been dealing with this for years. Was hoping to manage to one of your meetings but can’t seem to find a date and venue . Are they still running? Need to talk to someone. Laura

  2. Gem Reply

    Hi Sam,
    I’ve just found your blog whilst looking for info on M.E. I wondered how do you get diagnosed?

  3. Harriet Reply

    Hi Sam, I’m almost sixteen and have had ME for two years now but have just really accepted it. I have ah a constant overwhelming feeling of guilt and that when I can’t get up for scholl I’m so pethetic. I’m very very sad when spending all my school days resting and feel so so jealous of the active healthy buzzing youths in my year and I’m stuck in bed feeling sorry for myself 🙁 it’s so depressing to think I used to be that xx would really appreciate some help as I feel at the end of my struggle !lofe is really hard please help

  4. Anna Reply

    Hi Sam! Love your blog. Really great how you’ve never lost your humor. I wanted to share a link with you because I thought the information on there might be useful for your support group. It is http://www.hfme.org (The Hummingbird Foundation for ME). For me, this is the most informative and best website on ME I’ve come across, and it has helped me so so much. I think it can be of great value for sufferers themselves, but also to educate their friends, family, teachers etc. There are many downloadable information folders in various sizes about many topics revolving around ME. I’d be happy to see this link on your blog if you like it, or if you could spread it via FB, Twitter or so! (It is not my website, but has helped me so much.) Keep up your great work!

  5. emma Reply

    What a fab blog! I loved your stories and the way you described M.E. It’s nice to know that there are other people out there experiencing the same problems, and remaining positive. Good luck in the future.

  6. Hayley Reply

    Hi, I’m not too sure where to start. I have just had te diagnosis for ME. Is it right for me to be so angry? Needless to say, the symptoms have been about for some time, Ive just been dealing with them individually, not realising that they were all linked.
    I feel like I’ve lost myself. I used to be so active and now, well, now, most of my days consist of the curtains being drawn and me barely having the energy to move from the sofa.
    It seems to have all happened so quickly. It was only in June, I was a roller derby girl, attending the gym and looking forward to going back to uni.
    Its not September and I dont know myself. I’m drowning.

    • SamCKMcInnes Reply

      Hi Hayley

      I will drop you an email right now.

      Your message describes how we all can feel sometimes

      Stay strong


    • Kate Emmett Reply


      I haven’t been diagnosed but strongly suspect I may have ME. I’ve had a terrible immune system and constant illness since I had glandular fever 12 years ago. I came online looking for some answers and your comment stood out as I too am a roller derby girl! I’m really struggling to get to training tho which really holds me back. If you fancy a chat let me know xx

  7. lynda kennedy Reply

    Hi Sam
    Interested in attending the next support group meeting,
    can you tell me when it is?


    Lynda Kennedy

    • SamCKMcInnes Reply

      Hi Lynda,

      The group meets on the 1st and 3rd wed of every month in The Pivot centre in moodiesburn

  8. Chris Green Reply

    Morning! I’ve just released a book supporting ME research and wanted to see if I could write a blog your site to help spread the word – what would be the best way to get in touch?

  9. grant davidson Reply

    hi sam meet you last night at the screening and want to say thanks for putting the event on, it was very sad but very real and i hope the word can be spread about our condition by all who attended, my wife angela works in social work and is going to spread the word to her work mates so hopefully the word will spread throughout south lanakshire council and infinity and beyond (just like buzz lightyear lol ) anyway thanks again and i hope to attend the group meetings in the future.
    cheers grant.

  10. Linda Reply

    I’ve just found out about the film today via the evening times so won’t be able to see it. Will there be another date when it will be shown?

    • SamCKMcInnes Reply

      Hi Linda,

      Due to costs we will only be able to put the screening on one night. However we will add you to our mailing list and keep you posted of any other ME awareness events

      Kind Regards


  11. joan leckie Reply

    Could tell me if this documentary will be repeated. The advert was too late for me to attend at Cineworld. Thanks,

    • SamCKMcInnes Reply

      Hi Joan,

      Due to costs we will only be able to put the screening on one night. However we will add you to our mailing list and keep you posted of any other ME awareness events

      Kind Regards


  12. Anna Wood Reply

    Hi Sam

    Have advertised this showing of Shadows to the Glasgow ME meet-up group (about 180 on the mailing list). I only came across it by chance through a tweet – so do feel free to let me know about other events that people in Glasgow might be interested in, if you want more people to know about them.

  13. Laura Reply

    Hi 🙂
    I’m a SAM and had M.E for 4 years. A couple of months ago my boyfriend helped me set up a blog, and at the moment he’s writing it for me, he’s also my carer. I don’t really know how to get our blog out there to more people with M.E. I read your blog and think it’s really great so i was wondering if you had any advice? Thanks 🙂

    • SamCKMcInnes Reply




  14. Nicole Reply

    Hi Sam

    Im 20, turning 21 this year, and have had ME for about 8 years.
    I wanted to know how you feel about weight? Ive struggled for years to maintain a healthy weight as i only have enough energy to make a few trips to gym in a week, and then im exhausted to the max the next day, i crave carbs, ‘THE ZADE’, PLAY energy drinks, chocs etc… i also suffer from IBS as one of the symptoms an my food choices are very limited. Ive gained 4kg in the past 3weeks. Ive tried every diet pill and appetite suppressant but the need for an energy boost is usually greater than my self control. I was wandering if you had any trouble with weight gain/maintenance?
    i find your blog extremely comforting in a world were few understand <3

    Look forward to hearing from you

    • SamCKMcInnes Reply

      Hi Nicole,

      Thank you for taking the time to read the blog and comment on it.

      Ill send you a email in reply.


  15. Eirlys Irvine Reply

    Hi -just saw your blog mentioned on a FB page! I’m really interested to learn more about your yoga – I go to a specific Yoga for Health class but it would be interesting to learn more about it specifically for M.E.
    i will get a chance to read your blog properly when my 3 yr old has gone to bed tonight!
    Btw -I have fibromyalgia (as well as other stuff too) so when I saw your thing to try & stop spam I panicked -couldn’t even think what that sum was -lol! Fibro fog moment! 🙂

  16. Michelle Reply

    Hellooo mrs wuman!!!

    Just sitting in work discussing stuff

    Keep calm

    Bring on tonight

    Love youuuuuuuuuuuuu xxxxx

  17. Laura Reply

    OMG! i just cried when i started reading your blog! I.ve had M.E for the last 4 years and have had no-one else i know with M.e, the only one who understands it to any extent is my boyfriend! But now i have you! You’re amazing and i am probably going to be addicted now 🙂 xx

  18. Posh Reply

    Hey Sam, so glad the blog is back & we can all keep up to date with your progress. It’s amazing to think how much has changed it the last few year. But as always your are super positive and thinking of others. You are proof that u can achieve anything if u put your mind to it. Now get writing cos I can’t wait to read the next blog!
    Posh x
    Aka Proud big sis

  19. sally Reply

    Just read your history, have you ever been checked for crohns. Yes I was diagnosed with CFS and bed ridden after 4 years turned out to be crohns. Crohns can produce similar fatigue, gut problem, temperatures and bad joints, sometimes rashes

  20. Charlie Berry Reply

    Glad your site is up and running again. So funny at times and now I have an idea as to who your Celebrities friends are, makes it even better.
    Understanding the problems and challenges of ME through your site is an added bonus to broaden my understanding and awareness.
    Keep up the good work.

  21. Bart Reply

    Sorry to hear about your site being hacked. I’ve been reading it for a while but was too shy to leave a comment, I suppose. I’m not sure why, since I know how affable Moodiesburn folks are, being one myself 🙂

    I was never diagnosed with ME, but with PVF after a flu a few years ago. For two years I did a whole lot of nothing, and some symptoms persist to date, but I’ve started to think about employment again lately. Whatever I had, there is no doubt that I drew some of the inspiration to get over it from your site and from seeing you regain much of your mobility. You are always light-hearted and humorous in dealing with the cheerless condition that is ME.

    All the best!

  22. Terri Connolly Reply

    Hi Sam, glad to see your blog is back and just as amusing as ever. Keep it up! Take care! Terri xxx

  23. Gill Reply

    Glad to see the blog up and running again. Love reading it and it usually putting a smile on my face. Had a replapse 🙁 so got plenty time to read the ones from the beggining. Hope that idiot that hacked your site has found something better to do.

  24. Michelle Reply

    Yay! So glad I can start getting my blog fix again! Can’t believe someone would hack your site. It’s a shame you’ve lost the comments too as there were so many brilliant ones from people who have benefited from reading your blog!

    Looking forward to experiencing your journey again 🙂

    Mich xc

  25. Mike Brodie Reply

    Hi Sam. Love ur site and would love to know how it was created? I’d like to do a similar thing for people with MS I’m sick of the same shit associated with people suffering and just need a good kick up the arse to get it done! I tweet about Leeds Utd , MS and work and find it a relief to vent my frustrations sometimes.
    Get back when u can and take goo care of yourself!! X Mike

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